Role change at end of life

PhD interview transcripts and informed consent forms for study - Role change at end of life.

    Data Record Details
    Data record related to this publication Role change at end of life
    Data Publication title Role change at end of life
  • Description

    PhD interview transcripts and informed consent forms for study - Role change at end of life.

  • Other Descriptors
    • Descriptor

      Interview transcripts and consent forms from an Australian constructivist grounded theory research project examining the process of role change at end of life. The dataset consists of 25 files: 24 interviews and the consent forms. In-depth semi-structured interviews were conducted with 26 participants: 13 dying people (identified as P1 to P13), 8 family caregivers (identified as C1 to C8) and five health professionals (identified as HP1 to HP5). 2 interviews were conducting with the dying person and caregiver both present, the remainder were undertaken individually.

      Full methodologies and findings can be found in the thesis and in published papers as described in the Related Publications links below.

    • Descriptor type Full
  • Data type dataset
  • Keywords
    • dying
    • role change
    • end of life
    • palliative care
    • grounded theory
  • Funding source
  • Research grant(s)/Scheme name(s)
  • Research themes
    People and Societies in the Tropics
    Tropical Health, Medicine and Biosecurity
    FoR Codes (*)
    • 11 - Medical And Health Sciences
    SEO Codes
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  • End Date
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  • Locations
    Data Locations

    Type Location Notes
    Physical Location Secure HPRC gpfs01/Q0124/Research Data JCU...2020-01-08-a0b6588cf6e298ff29aa39bbad10588c
    The Data Manager is: Daniel Lowrie
    College or Centre
    Access conditions Restricted: no access
  • Alternative access conditions
  • Data record size 25 files: 4.32 MB
  • Related publications
      Name Alignment and mismatch in role relations at end-of-life: a constructivist grounded theory study
    • URL https://doi.org/10.1080/07481187.2019.1648330
    • Notes Presents findings related to one of the categories from the overarching study, specifically ?alignment and mismatch in role relations?.
    • Name Examining the transitions between living and dying roles at end-of-life
    • URL https://doi.org/10.1080/07481187.2018.1504836
    • Notes Presents findings relating to one of the categories from the overarching study, specifically ?oscillating between living and dying selfhoods?.
  • Related websites
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  • Data owners
      Daniel Lowrie
    Citation Lowrie, Daniel (2020): Role change at end of life. James Cook University.