Research Data

Role change at end of life

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General
Title
Role change at end of life
Type
Dataset
Date Record Created
2020-01-03
Date Record Modified
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Language
English
Coverage
Date Coverage
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Time Period
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Geospatial Location
Description
Descriptions
  1. Type: brief

    PhD interview transcripts and informed consent forms for study - Role change at end of life.

  2. Type: full

    Interview transcripts and consent forms from an Australian constructivist grounded theory research project examining the process of role change at end of life. The dataset consists of 25 files: 24 interviews and the consent forms. In-depth semi-structured interviews were conducted with 26 participants: 13 dying people (identified as P1 to P13), 8 family caregivers (identified as C1 to C8) and five health professionals (identified as HP1 to HP5). 2 interviews were conducting with the dying person and caregiver both present, the remainder were undertaken individually.

    Full methodologies and findings can be found in the thesis and in published papers as described in the Related Publications links below.

Related Publications
  1. Alignment and mismatch in role relations at end-of-life: a constructivist grounded theory study
    Presents findings related to one of the categories from the overarching study, specifically ‘alignment and mismatch in role relations’.
  2. Examining the transitions between living and dying roles at end-of-life
    Presents findings relating to one of the categories from the overarching study, specifically ‘oscillating between living and dying selfhoods’.
Related Websites
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Related Data
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Related Services
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Technical metadata
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People
Creators
  1. Owned by: Mr Daniel Lowrie , daniel.lowrie@jcu.edu.au , College of Medicine & Dentistry
Primary Contact
Mr Daniel Lowrie, daniel.lowrie@jcu.edu.au
Supervisors
  1. Dr Robin Ray , robin.ray@jcu.edu.au
Collaborators
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Subject
Fields of Research
  1. 11 - Medical And Health Sciences (11)
Socio-Economic Objective
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Keywords
  1. dying
  2. role change
  3. end of life
  4. palliative care
  5. grounded theory
Research Activity
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Research Themes
People and Societies in the Tropics
Tropical Health, Medicine and Biosecurity
Rights
License
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License - Other
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Access Rights/Conditions
Dataset contains confidential or sensitive information. No access to data is permitted. Contact data manager for more information.
Type
restricted
Rights
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Data
Data Location
Online Locations
Stored At
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Citation
Cite:
Lowrie, D. (2020): Role change at end of life. James Cook University. (dataset). a0b6588cf6e298ff29aa39bbad10588c